Expertise

Understanding patient and consumer experience We specialize in studies about the experiences of patients and their families and other consumers. Our interest is in understanding patients’ perceptions of their needs, their views on treatment effects, and meaningful changes in a disease state. This research provides essential information to guide pharmaceutical companies in developing and testing treatments.

Photograph from behind a man standing behind another man in a wheelchair, looking across a park at trees
Photograph from behind a man standing behind another man in a wheelchair, looking across a park at trees

Generating data to inform patient-reported outcomes (PRO) Our qualitative studies have contributed to the creation and evaluation of PRO measures. We apply qualitative methods to assist researchers in identifying areas to be included in PROs and investigate respondent interpretations of measurement items to improve the wording.

Man in glasses gesturing and speaking in a focus group with 3 other participants surrounding a table
Photograph of a man in glasses gesturing and speaking in a focus group with 3 other participants surrounding a table

Understanding health behaviors and healthcare choices We have conducted studies on topics including patient decision-making, end-of-life care, treatment choices, and sexual function, among others.

Photograph over the shoulder of a woman interviewing a man on computer video chat
Photograph over the shoulder of a woman interviewing a man on computer video chat

Evaluation of healthcare and health education programs Our work in this area includes the implementation and evaluation of community and school-based interventions targeting the prevention of cardiovascular disease, smoking cessation, cancer screening, HIV/AIDS, and intimate partner violence. More recent efforts concern patient education related to genetic testing.

Photograph over the shoulder of a woman giving a presentation from a podium in an auditorium to a seated audience
Photograph over the shoulder of a woman giving a presentation from a podium in an auditorium to a seated audience